Disabled Consistency Prt. 2 Prt. 1 Here (u Dont Need To Read It To Understand This Post)

disabled consistency prt. 2 prt. 1 here (u dont need to read it to understand this post)

what happens to consistency, to habits, when you have a dynamic disability?

i want us to understand the differences between having a consistent body and having an ever changing one. sometimes you could be so healthy you are working/studying, exercising a few times a week, socialising, and independently caring for yourself. but other times.. you’re bedbound? can’t even shower and brush your teeth twice a day? can’t keep up with texting your friends or social media? what habit is surviving that.

you work so hard to build habits and follow routines you and your doctors have set, and then you achieve it, but then it all gets taken away in a flare-up. you wonder what the point is. its a constant vicious cycle. even abled people know its hard to build habits. it takes time. and you might not have that time.

for abled people, theres no time limit on building a habit. they might have a goal in mind of when they want to achieve it, but theres no actual clock ticking in the background.

for me, and for other dynamically disabled people, we are on a time crunch. you may not be aware of it, but you are. it’s always a race to get things done while you can, build those habits and routines and get consistent and get your life together while you can. because even if you’re not thinking it, you are living on a countdown until your next flare-up. until the next crash, the next time you lose all your progress.

and that cycle, is exhausting. it’s like building a sandcastle right on the shore. you build it and you get to revel in it for a second. then it’s gone. there may be a little bump in the sand where your hard work had just stood, but essentially, you are starting from scratch. while the abled people are up the beach a few metres and their sand is perfectly wet and perfectly dry and the waves never reach it.

then those same people, tell you to just keep building. “eventually you’ll get there!” “keep trying!” “habits take time!” they say. but how? there will always be another wave.

understanding this difference in experience is so important if you want to understand why you can’t just tell a disabled person to form habits or be consistent and expect results.

Tags

chronic fatigue chronic illness chronic pain chronically ill disability disabled disabilties mental illness actually mentally ill mentally ill invisible disability physical disability physically disabled invisible illness disability advocacy 🍯.chrncsick

More Posts from Zylahbee and Others

zylahbee

4 months ago

If you’ve ever related to the phrase “if you want something done right, do it yourself” then you have absolutely no right telling a disabled person with carers how it “must be so nice to have people help you to cook/ clean/ shower”

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zylahbee

3 months ago

on day 5 of a migraine get me out of here

Tags

chronic fatigue chronic illness chronic pain chronically ill disability disabled invisible disability migraine invisible illness chronic migraine 🍯.chrncsick 🍯.lifeupdte

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zylahbee

4 months ago

hot take apparently but just because youre disabled doesnt mean you arent ableist. being disabled doesnt erase your internalized (or externalized) ableism.

if youre paralyzed and you think ambulatory wheelchair users are 'less deserving' of a wheelchair, thats ableism.

if you have adhd and you make fun of autistic people, thats ableism.

if you have dyslexia and think dyscalculia and dyspraxia arent "real problems," thats ableism.

if you have any disability and think ableists should be 'punished' for their ableism by becoming disabled themselves. believe it or not that is in fact ableism, because it perpetuates the idea that disability is something shameful or something that only happens to bad people

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zylahbee

4 months ago

blog info 🌷🍯

hi my name is bee, welcome to my main blog! it’s basically my diary.

here i talk about my experience as a LSN disabled/chronically ill person! i am medically complex and have medical PTSD. i also talk about abuse and childhood trauma. if any of those topics trigger you this is your warning ♡

all about bee 💌

art blog + art tag

chronic illness/disability + life updates

mental health + diary

human rights

music

books + reviews + writing

fandoms 🍰

barbie ever after high marvel precure strawberry shortcake tangled winx club

Free Palestine.

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zylahbee

4 months ago

Terrarium Life collection~

I painted these way back during the pandemic (hence the hoard of toilet paper and Switch that I wish I had, but they were all sold out) No pandemic now but the chimney smoke from all the neighbors have made the air unbreathable and I'm stuck inside again 😭 cuddling my dog, drinking tea

tending to my fish tank and my plants

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zylahbee

1 month ago

✨✨✨✨Magic Winx✨✨✨✨

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zylahbee

2 months ago

ah yes the fun of will i surprise the doctor with a personal relief method they havent heard of yet 😇

Tags

chronic illness chronic pain chronically ill migraine chronic migraine

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zylahbee

4 months ago

I really like Bloom's new looks. The wings might of been a pain to figure out, but damn are they pretty.

While I get why people don't like the reboot take on Magix Winx, (they go so hard in a different direction then the original) I also think the fandom has been unfairly harsh to the new designs.

They're all really fun and bursting with personality, something we haven't really had in Winx fairy forms for like... a decade. While they don't beat the originals, I respect these designs for going for their own thing with inspiration from the og as oppose to trying to replicate them unlike the Trix

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zylahbee

4 months ago

you forgot the one that says “everything”