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Aac User - Blog Posts

3 months ago

I’m looking for another AAC since Avaz went to shit. Any recommendations?


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1 year ago

I actually used my AAC in public today for the first time. I know this might not sound like much to some people, but when I have speaking issues and end up nonverbal or having a verbal communication issue (I don’t know what to call it without people getting mad at me) I normally just stop talking all together and isolate myself. This AAC really helped me so much today and I don’t feel so drained physically and mentally from work. I’m really happy so now I don’t have to go home and sleep the rest of my afternoon away, I can play a game or read!!

Also, I don’t know what you’d call it that I have. I was nonverbal for well over 7 years and have on and off verbal issues where I can talk some days but most days I’m completely silent. Recently I’m having an episode that’s seeming to last about 4 days.


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2 years ago

(Tw for a VERY brief mention of infantilization)

I want to talk about interacting with AAC users in person, specifically for speaking people.

1. Being an AAC user, I get left behind during conversations a lot because it takes me longer to add in my statement. By the time I'm done, the topic has oftentimes changed and then what I want to say isnt relevant anymore, and sometimes wont even be understood because to everyone else what I just said was out of place and random. This feels really frustrating and sometimes isolating, as well as embarrassing. Please wait for us, we want to converse too.

2. Sometimes when I am not yet done responding, people will watch me and try to guess what I'm going to say. If all I've got down so far is "I already", people might go "I already.. know!" "I already.. saw!" etc. Please stop doing that. Even if you got the idea correct, you might use the wrong words, which frustrates me. And even if you say it all correctly it's still frustrating, imagine if someone tried to guess what you were saying by interrupting you every time you started to talk. It's annoying.

3. Dont comment on what in our folders. If I open a folder to get to another word, and whilst doing that you see a different word in it that's funny or inappropriate or whatever, keep it to yourself. Its annoying. You have acsess to those words, and it isnt treated as weird, so why is it for me?

4. Don't infantilize us. We aren't perpetually children. We are our age. Treat us as if we are a speaking person of our age.


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